Endometriosis – Getting the Word Out.
What is Endometriosis? Endometriosis is a painful, chronic disease that affects 5 1/2 million women and girls in the USA and Canada, and millions more worldwide. It occurs when tissue like that which lines the uterus (tissue called the endometrium) is found outside the uterus — usually in the abdomen on the ovaries, fallopian tubes, and ligaments that support the uterus; the area between the vagina and rectum; the outer surface of the uterus; and the lining of the pelvic cavity. Other sites for these endometrial growths may include the bladder, bowel, vagina, cervix, vulva, and in abdominal surgical scars. Less commonly they are found in the lung, arm, thigh, and other locations. This misplaced tissue develops into growths or lesions which respond to the menstrual cycle in the same way that the tissue of the uterine lining does: each month the tissue builds up, breaks down, and sheds. Menstrual blood flows from the uterus and out of the body through the vagina, but the blood and tissue shed from endometrial growths has no way of leaving the body. This results in internal bleeding, breakdown of the blood and tissue from the lesions, and inflammation — and can cause pain, infertility, scar tissue formation, adhesions, and bowel problems. What are the Symptoms of Endometriosis? Pain before and during periods Pain with sex Infertility Fatigue Painful urination during periods Painful bowel movements during periods Other Gastrointestinal upsets such as diarrhea, constipation …
i am so sorry about what you are going through. i have been dignosed with endometriosis – stage 4 and i had to have a two serguries – the doctor suspected i had it before but only confirmed it after my first surgery which required the removal of chocklate cysts
I have it too. I find myself deciding not to eat so I don’t have bowel movements. It hurts too much. Could endo be causing a new eating disorder?
Try Alternate Nostril Breathing – Anulom Vilom – Nadi Shodhana are the other names. It is an ancient breathing technique to purify the nadis, chakras and heal the body. Look it up on utube. Try it religiously for a few months. Love and Blessings. Also Sanskrit Mantra is very powerful –
AUM RAM RAMAYA SWAHA
RAMA (just the sound)
Mahamrityunjaya Mantra – Look it up on utube.
my 16 yr old sister has been having strange, painful symptoms since she started her period and i’m wondering if it’s endometriosis. she has chest pain come on only during her cycles, hot flashes/low grade fevers, bloody nose, and was earlier seen by er because of painful “ovaries”… they vaguely diagnoses cysts. she’s about to go on a treadmill and tons of other tests.. it would be closure if she really ended up having this..at least it’s an answer.
In agony yet again after having a total hyst 5 years ago !
I sure sign you have Endo is a bleeding or sore, red naval.
@FailtacularWin
I fucking hate it , too !
5 years after having a COMPLETE surgical hysterectomy/ooperectomy and I’m in bloody agony .
hai really need to find somebody who clicks with me
@suevasu
I have severe pain last year and dr said I have developed from endo to cyst. I am scared it will lead to more. I am now eating unproductive pill everyday n stop when period comes.
started drinking apple cider vinegar it helps with the pelvic pain one glass of water and 1 table spoon of vinegar..at night
Thank you for being brave and sharing your story. You are absolutely right! If we as women do not make our voices heard in the medical/health insurance community more young girls will have to suffer needlessly. I share the same concerns that my nieces will have similar experiences as I was nine years old when my symptoms first developed. So be persistent ladies. Do not let anyone tell you that your experiences are not valid or valuable!
@TheUrbanhippy I do the same thing and I think you’re right about that. Ever since I got sick with endometriosis it isn’t easy to eat, and as the disease progresses, I eat less and less. I am currently 35 pounds underweight and even on my good days I feel terrified to eat either because I fear pain or because of all the previous vomiting and pain I just don’t want anything to do with food.
Look into raw foods.
Im 18. My gynecologist thinks I have endometriosis. I’m having a laperoscopy the 1st of October. I’m nervous about it:(
I’m so sorry you have lost your uterus at suc a young age. I’m 26 and have been struggling with the disease and it’s counterparts for years, but I would urge other sufferers to seriously consider having the mirena iud inserted – it has put me in remission for 2.5 years so far:)
I Have PMDD And was 2 days ago diagnosed with this..I had to c-sections as well..I’m 32 and Was curious if anyone else noticed a link between PMDD and this???
@norther4life Wow, Im so glad to know im not the only one hating food, but at the same time it freaks me out to think theres no cure, and some women have died from it turning into cancer! Freaky
Wow, I had no idea people were still commenting on my video. I’m glad it has helped inform people of whats going on with Endometriosis. I’m really sorry to hear that so many of you have it, although I do believe it is a break through in medicine for it to be diagnosed so widely. Only 20 years ago most of us would have gone without diagnosis. Maybe in another 20 there will be a cure or better medicine. I wish you all luck and thank you for the support in building this community of awareness.
I did this ireport on Endometriosis for CNN.
Feel good
WorldWideWeb – ireport.cnn.com/docs/DOC-484025
I did this ireport on Endometriosis for CNN.
Feel good
WorldWideWeb – ireport.cnn.com/docs/DOC-484025
My daughter and I have been discussing this disease, since it runs in our family, I as the mother had Endometriosis, but did not know anything at all about it except the pain. Nothing was every explained. My daughter has been experience symptoms since the beginning of her period at 13. She is now 21. Thank you for guiding us and answering so many unanswered questions and leading us to this great site.
My girlfriend has this condition and is suffering similarly. Bless your heart, it sounds so horrendous. I’m trying to be a good boyfriend for her but it is hard between the pain and depression.
This condition needs more attention!!
@chumpey It is really hard to be on the opposite side of Endo. I live in pain so long that I have learned to not let people touch me because I know they inflict more pain not realizing it. In the end, I have made it so even the ones I love can’t touch me. You will have your hands full, and need to realize even if she isn’t a cuddle bug, it really is not you. It’s the one disease where you can actually believe someone when they say that.
I really appreciate this video. My boyfriend showed this to me. I have had endometriosis since I was about 10, and they didn’t believe anything was wrong with me aside from laziness. I am about to go into my 5th surgery February 11th 2011 and I am very nervous about it because it’s gotten so much worse. The last surgery I had they punctured my bladder leaving me with a catheder for 3 months. Thank you for posting this video. People like you really do help people like me.
@injuryism I am sorry you have needed so many surgeries. It seems that every one we have just seems a little bit harder to recover from, doesn’t it? I know you will be alright though. To have made it through what you have means you are strong; despite our bodies we are strong. It sounds like your boyfriend is an amazing person. Make sure you don’t push him away during recovery and just remember that accepting help is neccessary for proper recovery. You will be fine.
Good luck.
This video clip is pretty decent, thank you for taking the time to upload it